Out of the Darkness is about our family finding intervention, treatment, and a lasting recovery for our son who suffers from a severe brain disorder. There are solutions. Feel free to post questions and/or comments.
About Me
- Deborah Fabos
- I have 'spearheaded' the movement for a safe and lasting recovery for my son. I have learned specialized techniques to address behavior from an unstabilized individual who suffers from a severe brain disorder in order to keep him home until more in-depth treatment could be found. I obtained information from organizations as well as informed myself through reading books and newsletters. It takes work, but it can be done. It also takes a team effort from our family and the right professionals. And everytime I see my son smile, give love to his dog and other family members, or just jokes around, I am rewarded daily! We have our son back.
Popular Posts
-
My son has a recent urin test result that shows he has elevations in Pentacaroxyporphyrin and Precoproporphyrin/Uroporphyrin l & lll ...
-
My son suffers from bioneurological brain disorders. Without the right treatment and support that he needs, his medical condition prevents h...
-
We found a new home! Please come and visit us at our new blog location! http://familyfabos.wordpress.com/
-
Michael Schofield (The Jani Foundation) wrote this blog on his site (http://janisjourney.org/index.php?option=com_myblog&show=30-minute-...
-
What will it take to provide the needed hospital beds and continued support services for the SMI who suffer from severe symptoms the treatme...
-
Although it was when my son started on the Clozapine trail we saw lasting improvement of his severe and dangerous symptoms, we have always g...
-
I've been reading some posts on the NAMI group site on Linkedin and I wanted to express what worked for our family on this issue. My son...
-
In response to Dr. Christopher Gordon’s letter ‘Invitation to a Dialogue: Forcing Treatment’ (http://www.nytimes.com/2013/01/30/opinion/invi...
-
'Minds on the Edge' "Facing the issues of Serious Mental Illness" This is a great resource. Also on facebook.
-
Just a little something to think about if you have ever tried to care for someone who suffers from an untreated severe mental illness with s...
Monday, October 15, 2012
Our first step was intervention. Jail was used due to lack of hospital beds...
What will it take to provide the needed hospital beds and continued support services for the SMI who suffer from severe symptoms the treatment they have a right to? There are protections in place for psychiatric abuse, but what is in place to reduce the severe symptoms of those who can not get help for themselves? Should we be satisfied with the care the streets and jails provide for them?
For our family, it wasn't even a consideration! Our son needed treatment not punishment! He needed a safe environment to recovery in and not more trauma that is found on the streets and in the jails! We would never consider putting someone with dementia in jail or loose on the streets as a punishment for the symptoms of their brain disorder. Why is it ok for this form of brain disorder? It isn't right. It isn't ok.
I petitioned the court to have our son released into my custody so that we could get him the treatment he needed and not the punishment he would find in jail.
AOT was not available to us so I requested that compliancy to treatment be part of his probation to which the judge so ordered.
Our son was beyond talking or reasoning with. At this time his attention span was less than one minute. The inner stimulation was so strong and constant there would be a 10 second delay in any response to a question or statement we directed at him.
Nothing short of compliance to treatment could bring him back from that. For some, this is what the first step looks like. Without it, nothing else is possible.
Saturday, October 13, 2012
A time and a place...all needed when he was ready
Through the course of the intervention, treatment, and a lasting recovery for our son (he has been relapse free for over nine years) we have used various methods that may appear to some to conflict with each other. I would just like to say that for us, there was a time and a place for everything we have done for and with our son. There was a time when we needed to have court involvement to get him to be compliant to treatment. A time when we wrote a contract for him to live at home. A time when we had reinforcement programs to encourage wanted behavior and a time when we faded the programs because we no longer needed them. A time when we could talk with him about why he should take his medication and then when he regained some insight to his illness. It has all been a process. There has been a time and a place for many different and conflicting philosophies regarding how to approach intervention, treatment, and recovery. I would just like to say that in our son's case, there has been room for all in it's proper time when he was ready. I don't see the different methods as conflicting. I see them as offerings for the time when he's been ready for them. Helping him and us to the next level. For us, there is room for AOTs, ABA, and for techniques from the LEAP Institute. For us they work well together to help us achieve our goal. A lasting recovery for our son.
Friday, October 5, 2012
Healing thru Family:From the smallest member
Today is my grandson's fifth birthday!
I've been caring for him since he was three months old. About the time our son came home from a lock down facility in Texas.
My grandson has brought so many blessings to our family that all children bring and more.
As my son has been watching his nephew grow, and when he was ready, he has taken part in some of my grandson's activities. This has healed many parts of my son that we would not have been able to reach otherwise.
He has learned more about unconditional love, how to be more conscience when working with his smallest family member, and how early experiences help shape what a person he will become as an adult. And patience!
My son's healing includes his being able to remember parts of his own childhood that he had forgotten about (I would provide pictures of him when he was my grandson's age along with stories) and look at other parts of his past from a different perspective. This has been such a great source of healing for him!
Because of our close family relationships, and under my supervision and guidance (again, when he was ready), my son has learned how to talk to his nephew in an age appropriate manner.
He has learned how to teach his nephew simple cooking projects and has accepted the responsibility of helping with his physical education by teaching him how to bowl, play miniature golf, and other activities that they can enjoy as they each continue to grow.
We have been very blessed to be able to have an extended family. My grandson has greatly benefited from my son's involvement, too, and he loves his uncle dearly!
I always provide support for my son when he is with my grandson. He never feels as if he is 'alone'. My daughter makes herself available by phone to him always and my son likes to call her about the latest funny thing her son did.
Sometimes my son watches my grandson, in a public waiting area, while I have a doctors appointment. My son knows about my grandson's 'survival kit' and how to manage any behavior he may have while I'm seeing the doctor. My grandson listens to his uncle and both enjoy this time together. Although we limit the duration and the frequency to keep my son's stress level down.
My son is 6'3" and now weighs about 260 pounds. My grandson is about 3' and weighs about 40 pounds and has his uncle wrapped around his little finger! I often hear my grandson shout at my son, "No! I do it!", and I hear my son's gentle laughter in response.
My son is very protective of his nephew and his love and sense of belonging to the world has been expanded due to this little guy.
He is our littlest member of my son's support team! And highly valued!
Subscribe to:
Posts (Atom)
Give Them Something to Hold On To!
This was an article I wrote for Step-Up-On-Second's Summer 2008 newsletter about our journey to be able to give James motivation (something to hold on to) in order for him to stay compliant to treatment.
It explains a little about what we did as a family to facilitate his changing needs while staying safe.
I will be happy to share it on request.
I have also written and had publish a couple of letters to the editor for different newspapers in support of Laura's Law here in California.
I have also written and had publish a couple of letters to the editor for different newspapers in support of Laura's Law here in California.
Laura's Law is an assisted treatment law that would enable those who suffer from a severe mental illness to get Treatment BEFORE Tragedy!
BEFORE jail, homelessness, or violence!
Please write to your local representatives, your senators, your Board of Directors and the Governor of California. Tell them you want to see Laura's Law fully implemented in the state!
Please write to your local representatives, your senators, your Board of Directors and the Governor of California. Tell them you want to see Laura's Law fully implemented in the state!
If you live in another state and want your state to have Assisted Outpatient Treatment laws like Laura's Law, click on the link below for the Treatment Advocacy Center and find out who you need to contact.
Early treatment is what gives us hope for a recovery.
HERE ARE THE TWO FIST STEPS WE DID
The first, was as early an intervention as possible.
The second, was putting together the right treatment team for my son.
The second, was putting together the right treatment team for my son.
INTERVENTION
Daniel's Place
www.stepuponsecond.org/services/help.html
1619 Santa Monica Blvd.
Santa Monica, CA. 90404
(310) 392-5855
First stop to getting important information at the beginning of the onset of a severe mental illness. They also serve those with autism.
Lost Hills Sheriff's Department who would send out officers when we needed back-up and to the At Risk program that tried to help our son.
Barry J. Nidoff Juvenile Hall
Sylmar, CA 91342
Some of these people have moved on to other locations but we are very grateful they were here when we needed them the most.
1) His Honor Commissioner Gold who understood what we were facing with James and did all in his power to support us in being successful with his prognosis. He ordered that compliance to treatment be part of James' probation because AB1421, Laura's Law, was not available to us.
2) Public Defender Evan A. Kitahara was what we needed to get James treatment. I would recommend this man to anyone. He is one who spear headed all the conections with the Public Mental Health Attorney for James while he was in Juvenille Hall. Mr. Kitahara understood our situation and he was a big part in our success.
3) Public Mental Health Attorney Lisa Greer. She was responsible for getting James what we needed from the Juvenile Hall school that would qualify him for Emotionally Disturbed status that would allow us to pursue placement through our school system and the Department of Mental Health in an out-of-state lock down facility. She also had James sign over his educational rights to me which was critical in the last years when he wanted to stop the program he was in out-of-state. It also gave me power in the Individual Education Plan meetings (IEP) once James was of legal age. She spent all day in one meeting with us to insure we had the right verbage so that James would have what he needed in our school district. She did so while missing an important meeting for her own special needs child. A great woman.
4) Jerrald. F. Pedrotti - great help in connecting with Even, Lisa, and James when he was in Juvenile Hall. A great advocate for treatment and a great mentor to those lucky enough to get his attention and help.
5) The various probation officers that would listen to our family needs and support treatment.
Child Advocate (name forthcoming) to help us navigate through some tough meetings with the school district to get a lock-down facility approved by the district to meet James' needs at that time.
Las Virgenes School District
Mental Health Attorney (name forthcoming) to get probate conservatorship so we control James' SSI monies until the time when he is ready to take control of his finances.
Devereux Residental Treatment Facility
http://www.devereux.org/
League City, Texas
www.stepuponsecond.org/services/help.html
1619 Santa Monica Blvd.
Santa Monica, CA. 90404
(310) 392-5855
First stop to getting important information at the beginning of the onset of a severe mental illness. They also serve those with autism.
Lost Hills Sheriff's Department who would send out officers when we needed back-up and to the At Risk program that tried to help our son.
Barry J. Nidoff Juvenile Hall
Sylmar, CA 91342
Some of these people have moved on to other locations but we are very grateful they were here when we needed them the most.
1) His Honor Commissioner Gold who understood what we were facing with James and did all in his power to support us in being successful with his prognosis. He ordered that compliance to treatment be part of James' probation because AB1421, Laura's Law, was not available to us.
2) Public Defender Evan A. Kitahara was what we needed to get James treatment. I would recommend this man to anyone. He is one who spear headed all the conections with the Public Mental Health Attorney for James while he was in Juvenille Hall. Mr. Kitahara understood our situation and he was a big part in our success.
3) Public Mental Health Attorney Lisa Greer. She was responsible for getting James what we needed from the Juvenile Hall school that would qualify him for Emotionally Disturbed status that would allow us to pursue placement through our school system and the Department of Mental Health in an out-of-state lock down facility. She also had James sign over his educational rights to me which was critical in the last years when he wanted to stop the program he was in out-of-state. It also gave me power in the Individual Education Plan meetings (IEP) once James was of legal age. She spent all day in one meeting with us to insure we had the right verbage so that James would have what he needed in our school district. She did so while missing an important meeting for her own special needs child. A great woman.
4) Jerrald. F. Pedrotti - great help in connecting with Even, Lisa, and James when he was in Juvenile Hall. A great advocate for treatment and a great mentor to those lucky enough to get his attention and help.
5) The various probation officers that would listen to our family needs and support treatment.
Child Advocate (name forthcoming) to help us navigate through some tough meetings with the school district to get a lock-down facility approved by the district to meet James' needs at that time.
Las Virgenes School District
Mental Health Attorney (name forthcoming) to get probate conservatorship so we control James' SSI monies until the time when he is ready to take control of his finances.
Devereux Residental Treatment Facility
http://www.devereux.org/
League City, Texas
TREATMENT TEAM
Tracy Rosberg, Ph.D. psychologist
23401 Park Sorrento, Suite 200B
(818) 591-3000
Either Tracy or a member of her team can help with a wide range of disorders including Autism. Tracy helped us with my son getting on a Clozapin trail and she recomended UCLA. She also personalizes her therapy session to fit the needs of the person. She would take walks with my son because he couldn't sit in a room for a long peroid of time.
Dr. Steve Marder at the UCLA Schizophrenia Clinic
Outpatient Schizophrenia Program
http://www.psychiatry.ucla.edu/
Information and referral - (310) 825-9989
or (800) 825-9989
(310) -268-3647 to schedule an appointment.
Sophie at ICPS - (951) 354-6804
ICPS (Independent Consultant Pharmacist Services) - monitors blood test for white blood cell count and more. A great help to both the doctors and the families who have a member on a Clozapine trail.
Ride-On:
http://www.rideon.org/
e-mail: info@rideon..org
10860 Topanga Canyon Blvd.
Chatsworth, CA. 91311
(818) 700-2971
Horse therapy with psychoanalyst. This was a great help to James regaining some of his self-confidence and much more.
They service all types of mental and physical disorders.
Victory Wellness Center- Day Program and much more
14411 Vanowen St.
Van Nuys, CA. 91405
(818) 989-7475
ABA (Applied Behavior Analyisis) - Behavior modification techniques that allowed us to develop personalized programs to keep James compliant to treatment, extinguish unwanted behavior (even when he wasn't yet stable with the right treatment), increase wanted behavior, self-esteem, and over time trust. I learned the basics from an Autism Patnership trainer with on the job training in a Community Based Instuction High School setting but there are many who offer this program. It is designed for those with autism but I found that once I deveolped a plan around the needs of my son, it was still the most effective behavior modification program for when he was not able to reason out problems. Behavior is behavior, in my humble opinion.
23401 Park Sorrento, Suite 200B
(818) 591-3000
Either Tracy or a member of her team can help with a wide range of disorders including Autism. Tracy helped us with my son getting on a Clozapin trail and she recomended UCLA. She also personalizes her therapy session to fit the needs of the person. She would take walks with my son because he couldn't sit in a room for a long peroid of time.
Dr. Steve Marder at the UCLA Schizophrenia Clinic
Outpatient Schizophrenia Program
http://www.psychiatry.ucla.edu/
Information and referral - (310) 825-9989
or (800) 825-9989
(310) -268-3647 to schedule an appointment.
Sophie at ICPS - (951) 354-6804
ICPS (Independent Consultant Pharmacist Services) - monitors blood test for white blood cell count and more. A great help to both the doctors and the families who have a member on a Clozapine trail.
Ride-On:
http://www.rideon.org/
e-mail: info@rideon..org
10860 Topanga Canyon Blvd.
Chatsworth, CA. 91311
(818) 700-2971
Horse therapy with psychoanalyst. This was a great help to James regaining some of his self-confidence and much more.
They service all types of mental and physical disorders.
Victory Wellness Center- Day Program and much more
14411 Vanowen St.
Van Nuys, CA. 91405
(818) 989-7475
ABA (Applied Behavior Analyisis) - Behavior modification techniques that allowed us to develop personalized programs to keep James compliant to treatment, extinguish unwanted behavior (even when he wasn't yet stable with the right treatment), increase wanted behavior, self-esteem, and over time trust. I learned the basics from an Autism Patnership trainer with on the job training in a Community Based Instuction High School setting but there are many who offer this program. It is designed for those with autism but I found that once I deveolped a plan around the needs of my son, it was still the most effective behavior modification program for when he was not able to reason out problems. Behavior is behavior, in my humble opinion.
Links
- Applied Behavior Analyisis
- Daniel's Place
- LEAP Institute - Dr. Amador Xavier
- NAMI - National Alliance for the Mentally Ill
- NARSAD
- OutpatientSchizophrenia Program
- Proxy Parent - Special Needs Trusts
- Ride-On - Horse Therapy
- Step-Up-On-Second
- Stuart Zimring - Special Needs Trusts
- The Sidran Foundation
- Treatment Advocacy
- UCLA Schizaphrenia Clinic