About Me

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I have 'spearheaded' the movement for a safe and lasting recovery for my son. I have learned specialized techniques to address behavior from an unstabilized individual who suffers from a severe brain disorder in order to keep him home until more in-depth treatment could be found. I obtained information from organizations as well as informed myself through reading books and newsletters. It takes work, but it can be done. It also takes a team effort from our family and the right professionals. And everytime I see my son smile, give love to his dog and other family members, or just jokes around, I am rewarded daily! We have our son back.

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Wednesday, December 14, 2011

Pur Tap Water Filter for Removing Mercury

The transcript of the Scientific Review Panel on Toxic Air Contaminants for the State of California, April 27, 2001, page 233, line 7 states:

“I think it’s fair to point out, though, that the, quote, “mercury problem in California” is because we mined it {mercury} in the foothills, we dredged it – trucked it across the valley and used it for gold mining in the Sierras, so we contaminated a lot of streams, and it’s since run down and just spread itself all over the foothills and the valley, contaminating food sources for people. So that’s a pretty important exposure for mercury.”

Also, in the report, no levels are run to see how much mercury is being released in the air through medical waste burning. It is unknown to what level as there is no testing for mercury in the air.

We are taking all precautions we can to eliminate further mercury contaminates to build in our son's system. Currently, the Pur tap water 3 stage filter eliminates mercury as well as lead and other contaminants. We hope that everyone will find their own way to take precautions, too.

Tuesday, November 22, 2011

Full Pannel Blood Test = First Step

Our naturalist doctor (with guidance from UCLA) has ordered a full panel blood test for our son to better determine his current health. The first line of defense will be to strengthen any weak areas that he has in order to promote his natural defenses against any toxins.

This first step will take some time before we will be able to look at removing any mercury from his system. Our family is hopeful that our son will feel better and be healthier after this first stage. We have a lot to be thankful for this year!

Monday, November 14, 2011

Mercury Toxins and Schizophrenia Symptoms


My son has a recent urin test result that shows he has elevations in Pentacaroxyporphyrin and Precoproporphyrin/Uroporphyrin l & lll compounds which the report from Metametrix lab shows toxic effects from Mercury exposure. Please feel free to share any information you might have on Mercury toxins and how it relates to Schizophrenia symptoms. We hope to hear today what the next step is and how involved it will be. It has been suggested that for his condition, the best method for removing the mercury from his system would be to have him hospitalized as a precaution with an IV. We will see what is the final approach soon I hope. We are looking at this positively as once the mercury is removed he should be feeling better and we are hoping a reduction in his symptoms which will also result in a decrease in his medication. Time will tell. Please keep us in your prayers.

Thursday, September 22, 2011

Renewed Desire

Living with a severe mental illness is like being at the beach with the tide moving in and out. All you can do is be supportive when the tide comes in and wait until it moves out again. The tide for us has just moved out!

Now, my son just made a friend at his day program, which he just returned to weeks ago, and they went to hit buckets of balls at the driving range! His father and I are so very pleased that he's reaching out and being social with those who will support his recovery. For the longest time, he would only choose 'typical' people his age who were struggling with sobriety themselves because he didn't want to befriend someone like him. I am hopeful that we are entering into an acceptance time when his recovery will only deepen.

He's now talking about going to Magic Mountain with the group from his day program! For now, we're enjoying the blessings that are left behind when the tide goes out!

Friday, July 22, 2011

What a great son!

James made his first solo trip in the car since he regained his drivers license!! We're so proud of him! His first trip was to the library to return some movies he checked out. Yesterday, he called me on my cell because I was out walking home with my grandson and asked if I wanted him to come and pick me up. My husband said once I got home that James was really worried about us because we were out in the heat.

I'm so proud of him and the point he has reached so far in his recovery! It's great to see his self-esteem improve and see his attachment and compassion regarding family members. I am so thankful that his lasting recovery has allowed him to have such a wonderful quality of life!

Given that we were advised to hospitalize him, that he is low functioning, would be violent without medication, and is suffering from Schizophrenia with severe symptoms, his recovery has exceeded our wildest hopes!

I am ever grateful to all those organizations and individuals who played such an important role in our most dire times! Please see below for an almost complete list.

Blessings to all!

Tuesday, July 19, 2011

Treatment Advocacy's new trailer "Stop the Revolving Door - A Civil Approach to Treating Severe Mental Illness

If my son was not compliant to treatment we would not be enjoying his lasting recovery! We would not be able to share our lives with him. Share our love with him. He would not have a good quality of life that he enjoys now. He would not have his family to give him love, support, and guidance. Treatment Advocacy gave me the needed outline to design his intervention, treatment, and recovery.

Please check out the first video bar and watch 'Stop the Revolving Door' trailer from Treatment Advocacy. Assisted treatment saves lives, brain cells, and families. Please click on their link below and support them in their work. It makes all the difference!

Saturday, June 25, 2011

Treatment includes but is not limited to medication

Although it was when my son started on the Clozapine trail we saw lasting improvement of his severe and dangerous symptoms, we have always gone down the organic road first and we still do. We give him the following to promote both body and brain health as well as making some form of physical exercise part of his weekly routine/treatment. Here are the supplements, which far outweigh the amount of medication he is on. We have found that by providing these nutrients the amount of medication is lower than without them.

Niacin 1500mg daily. We can really see a difference in the amount of 'inner stimulation' and reasoning when he is taking this.

B-12 5000mg daily. Promotes brain nerve health.

D3 6000I.U. daily. Helps so many bodily functions including heart health! He is tested for his D3 level so we don't give him too much which is toxic.

C 1000mg daily.

E 400 I.U.

Omega-3 (Fish Oil) 2400mg daily.

I work with a professional nutritionalist as well as information from top psychiatrist for helpful supplements. I would not recommend giving any supplement before consulting with such professionals.

Thursday, June 2, 2011

It never ceases to amaze me...

Even though my son is still conflicted about being compliant to medication, it never ceases to amaze me that his trust and love for us, his family, motivates him to be compliant against his own feelings that he doesn't always want to take his meds. Giving him something to hang on for has really been one of the corner stones to his recovery. We work hard to give him a quality of life that he doesn't want to risk losing by not taking a few pills. I am thankful every day for his recovery.

Saturday, April 23, 2011

Passed another mile stone!

James went out and re-applied for his driver’s license yesterday! He took the written test and only missed one question! (They did not require him to take the driving part of the test.) So, with his temporary license in hand, now the search for reasonable insurance rates begins. We're so proud of him and he has gained more self-confidence! Onward to his GED and the article for CA Treatment Advocacy! "Slow and steady wins the race!" This is our mantra now.

Give Them Something to Hold On To!

This was an article I wrote for Step-Up-On-Second's Summer 2008 newsletter about our journey to be able to give James motivation (something to hold on to) in order for him to stay compliant to treatment.

It explains a little about what we did as a family to facilitate his changing needs while staying safe.

I will be happy to share it on request.

I have also written and had publish a couple of letters to the editor for different newspapers in support of Laura's Law here in California.

Laura's Law is an assisted treatment law that would enable those who suffer from a severe mental illness to get Treatment BEFORE Tragedy!

BEFORE jail, homelessness, or violence!

Please write to your local representatives, your senators, your Board of Directors and the Governor of California. Tell them you want to see Laura's Law fully implemented in the state!

If you live in another state and want your state to have Assisted Outpatient Treatment laws like Laura's Law, click on the link below for the Treatment Advocacy Center and find out who you need to contact.

Early treatment is what gives us hope for a recovery.


HERE ARE THE TWO FIST STEPS WE DID

The first, was as early an intervention as possible.

The second, was putting together the right treatment team for my son.

INTERVENTION

Daniel's Place
www.stepuponsecond.org/services/help.html
1619 Santa Monica Blvd.
Santa Monica, CA. 90404
(310) 392-5855
First stop to getting important information at the beginning of the onset of a severe mental illness. They also serve those with autism.

Lost Hills Sheriff's Department who would send out officers when we needed back-up and to the At Risk program that tried to help our son.

Barry J. Nidoff Juvenile Hall
Sylmar, CA 91342

Some of these people have moved on to other locations but we are very grateful they were here when we needed them the most.

1) His Honor Commissioner Gold who understood what we were facing with James and did all in his power to support us in being successful with his prognosis. He ordered that compliance to treatment be part of James' probation because AB1421, Laura's Law, was not available to us.

2) Public Defender Evan A. Kitahara was what we needed to get James treatment. I would recommend this man to anyone. He is one who spear headed all the conections with the Public Mental Health Attorney for James while he was in Juvenille Hall. Mr. Kitahara understood our situation and he was a big part in our success.

3) Public Mental Health Attorney Lisa Greer. She was responsible for getting James what we needed from the Juvenile Hall school that would qualify him for Emotionally Disturbed status that would allow us to pursue placement through our school system and the Department of Mental Health in an out-of-state lock down facility. She also had James sign over his educational rights to me which was critical in the last years when he wanted to stop the program he was in out-of-state. It also gave me power in the Individual Education Plan meetings (IEP) once James was of legal age. She spent all day in one meeting with us to insure we had the right verbage so that James would have what he needed in our school district. She did so while missing an important meeting for her own special needs child. A great woman.

4) Jerrald. F. Pedrotti - great help in connecting with Even, Lisa, and James when he was in Juvenile Hall. A great advocate for treatment and a great mentor to those lucky enough to get his attention and help.

5) The various probation officers that would listen to our family needs and support treatment.

Child Advocate (name forthcoming) to help us navigate through some tough meetings with the school district to get a lock-down facility approved by the district to meet James' needs at that time.

Las Virgenes School District

Mental Health Attorney (name forthcoming) to get probate conservatorship so we control James' SSI monies until the time when he is ready to take control of his finances.

Devereux Residental Treatment Facility
http://www.devereux.org/
League City, Texas

TREATMENT TEAM

Tracy Rosberg, Ph.D. psychologist
23401 Park Sorrento, Suite 200B
(818) 591-3000
Either Tracy or a member of her team can help with a wide range of disorders including Autism. Tracy helped us with my son getting on a Clozapin trail and she recomended UCLA. She also personalizes her therapy session to fit the needs of the person. She would take walks with my son because he couldn't sit in a room for a long peroid of time.


Dr. Steve Marder at the UCLA Schizophrenia Clinic

Outpatient Schizophrenia Program
http://www.psychiatry.ucla.edu/
Information and referral - (310) 825-9989
or (800) 825-9989
(310) -268-3647 to schedule an appointment.

Sophie at ICPS - (951) 354-6804
ICPS (Independent Consultant Pharmacist Services) - monitors blood test for white blood cell count and more. A great help to both the doctors and the families who have a member on a Clozapine trail.

Ride-On:
http://www.rideon.org/
e-mail: info@rideon..org
10860 Topanga Canyon Blvd.
Chatsworth, CA. 91311
(818) 700-2971
Horse therapy with psychoanalyst. This was a great help to James regaining some of his self-confidence and much more.
They service all types of mental and physical disorders.

Victory Wellness Center- Day Program and much more
14411 Vanowen St.
Van Nuys, CA. 91405
(818) 989-7475

ABA (Applied Behavior Analyisis) - Behavior modification techniques that allowed us to develop personalized programs to keep James compliant to treatment, extinguish unwanted behavior (even when he wasn't yet stable with the right treatment), increase wanted behavior, self-esteem, and over time trust. I learned the basics from an Autism Patnership trainer with on the job training in a Community Based Instuction High School setting but there are many who offer this program. It is designed for those with autism but I found that once I deveolped a plan around the needs of my son, it was still the most effective behavior modification program for when he was not able to reason out problems. Behavior is behavior, in my humble opinion.

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